About us

About us

This website is here to serve the patients and parents of those diagnosed with Fibular Hemimelia with information, resources & support as well as raising awareness and fundraising for Fibular Hemimelia related Charities. Our Facebook Community was started in 2014 and instantly brought a group of previously unknown people together, within such a small space of time the community has been able to reach out to people all over the world with support and advice from real-world experience.

We hope to run a series of events in 2015 to raise money for Fibular Hemimelia Research & Support Charities around the United Kingdom.